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# 5.1 Resource Patient - Content



Demographics and other administrative information about a person or animal receiving care or other health-related services.



## 5.1.1 Scope and Usage

This Resource covers data about persons and animals involved in a wide range of health-related activities, including:
Curative activities
Psychiatric care Social services
Pregnancy care Nursing and assisted living
Dietary services Tracking of personal health and exercise data

The data in the Resource covers the "who" information about the patient: its attributes are focused on the demographic
information necessary to support the administrative, financial and logistic procedures. A Patient record is generally
created and maintained by each organization providing care for a patient. A person or animal receiving care at multiple
organizations may therefore have its information present in multiple Patient Resources.

This resource is referenced by AdverseReaction, Alert, AllergyIntolerance, Appointment, AppointmentResponse, CarePlan, Composition, Condition, Device, DeviceObservationReport, DiagnosticOrder, DiagnosticReport, DocumentManifest, DocumentReference, Encounter, FamilyHistory, Group, ImagingStudy, Immunization, ImmunizationRecommendation, List, Media, MedicationAdministration, MedicationDispense, MedicationPrescription, MedicationStatement, Observation, Order, Other, Procedure, QuestionnaireAnswers, RelatedPerson, SecurityEvent, Specimen and Supply

5.1.2

Resource Content






UML Diagram









Patient (Resource)An identifier that applies to this person as a patientidentifier : Identifier 0..A name associated with the individualname : HumanName 0..A contact detail (e.g. a telephone number or an email address) by which the individual may be contactedtelecom : Contact 0..Administrative Gender - the gender that the patient is considered to have for administration and record keeping purposesgender : CodeableConcept 0..1 芦 The gender of a person used for administrative purposesAdministrativeGender+ 禄The date and time of birth for the individualbirthDate : dateTime 0..1Indicates if the individual is deceased or not (this element modifies the meaning of other elements)deceased[x] : boolean|dateTime 0..1Addresses for the individualaddress : Address 0..This field contains a patient’s most recent marital (civil) statusmaritalStatus : CodeableConcept 0..1 芦 The domestic partnership status of a personMaritalStatus+ 禄Indicates whether the patient is part of a multiple or indicates the actual birth ordermultipleBirth[x] : boolean|integer 0..1Image of the personphoto : Attachment 0..Languages which may be used to communicate with the patient about his or her healthcommunication : CodeableConcept 0.. 芦 A human languageLanguagePatient’s nominated care providercareProvider : Resource(Organization|Practitioner) 0..Organization that is the custodian of the patient recordmanagingOrganization : Resource(Organization) 0..1Whether this patient record is in active use (this element modifies the meaning of other elements)active : boolean 0..1ContactThe nature of the relationship between the patient and the contact personrelationship : CodeableConcept 0.. 芦 The nature of the relationship between a patient and a contact person for that patientContactRelationship+ 禄A name associated with the personname : HumanName 0..1A contact detail for the person, e.g. a telephone number or an email addresstelecom : Contact 0..Address for the contact personaddress : Address 0..1Administrative Gender - the gender that the person is considered to have for administration and record keeping purposesgender : CodeableConcept 0..1 芦 The gender of a person used for administrative purposesAdministrativeGender+ 禄Organization on behalf of which the contact is acting or for which the contact is workingorganization : Resource(Organization) 0..1AnimalIdentifies the high level categorization of the kind of animalspecies : CodeableConcept 1..1 芦 (The species of an animalAnimalSpecies) 禄Identifies the detailed categorization of the kind of animalbreed : CodeableConcept 0..1 芦 (The breed of an animalAnimalBreed) 禄Indicates the current state of the animal’s reproductive organsgenderStatus : CodeableConcept 0..1 芦 (The state of the animal’s reproductive organsAnimalGenderStatus) 禄LinkThe other patient resource that the link refers to (this element modifies the meaning of other elements)other : Resource(Patient) 1..1The type of link between this patient resource and another patient resource (this element modifies the meaning of other elements)type : code 1..1 芦 The type of link between this patient resource and another patient resource.LinkTypeA contact party (e.g. guardian, partner, friend) for the patientcontact0..This element has a value if the patient is an animal (this element modifies the meaning of other elements)animal0..1Link to another patient resource that concerns the same actual person (this element modifies the meaning of other elements)link0..*




Structure



































NameCard.TypeDescription & Constraints
.. Patient ResourceInformation about a person or animal receiving health care services
... identifier 0..IdentifierAn identifier for the person as this patient
... name 0..HumanNameA name associated with the patient
... telecom 0..ContactA contact detail for the individual
... gender 0..1CodeableConceptGender for administrative purposes
AdministrativeGender (Incomplete)
... birthDate 0..1dateTimeThe date and time of birth for the individual
... deceased[x] Indicates if the individual is deceased or not
.... deceasedBoolean0..1boolean
.... deceasedDateTime0..1dateTime
... address 0..AddressAddresses for the individual
... maritalStatus 0..1CodeableConceptMarital (civil) status of a person
MaritalStatus (Incomplete)
... multipleBirth[x] Whether patient is part of a multiple birth
.... multipleBirthBoolean0..1boolean
.... multipleBirthInteger0..1integer
... photo 0..AttachmentImage of the person
... contact ElementA contact party (e.g. guardian, partner, friend) for the patient
SHALL at least contain a contact’s details or a reference to an organization
.... relationship 0..CodeableConceptThe kind of relationship
ContactRelationship (Incomplete)
.... name 0..1HumanNameA name associated with the person
.... telecom 0..ContactA contact detail for the person
.... address 0..1AddressAddress for the contact person
.... gender 0..1CodeableConceptGender for administrative purposes
AdministrativeGender (Incomplete)
.... organization 0..1OrganizationOrganization that is associated with the contact
... animal ElementIf this patient is an animal (non-human)
.... species 1..1CodeableConceptE.g. Dog, Cow
AnimalSpecies (Example)
.... breed 0..1CodeableConceptE.g. Poodle, Angus
AnimalBreed (Example)
.... genderStatus 0..1CodeableConceptE.g. Neutered, Intact
AnimalGenderStatus (Example)
... communication 0..CodeableConceptLanguages which may be used to communicate with the patient about his or her health
Language (Required)
... careProvider 0..*Organization | PractitionerPatient’s nominated care provider
... managingOrganization 0..1OrganizationOrganization that is the custodian of the patient record
... link ElementLink to another patient resource that concerns the same actual person
.... other 1..1PatientThe other patient resource that the link refers to
.... type 1..1codereplace | refer | seealso - type of link
LinkType (Required)
... active 0..1booleanWhether this patient’s record is in active use





XML Template



<Patient xmlns="http://hl7.org/fhir"&gt; doco
<!– from Resource: extension, modifierExtension, language, text, and contained –>
<identifier><!– 0..* Identifier An identifier for the person as this patient § –></identifier>
<name><!– 0..* HumanName A name associated with the patient § –></name>
<telecom><!– 0..* Contact A contact detail for the individual § –></telecom>
<gender><!– 0..1 CodeableConcept Gender for administrative purposes § –></gender>
<birthDate value="[dateTime]"/><!– 0..1 The date and time of birth for the individual § –>
<deceased[x]><!– 0..1 boolean|dateTime Indicates if the individual is deceased or not § –></deceased[x]>
<address><!– 0..* Address Addresses for the individual § –></address>
<maritalStatus><!– 0..1 CodeableConcept Marital (civil) status of a person § –></maritalStatus>
<multipleBirth[x]><!– 0..1 boolean|integer
Whether patient is part of a multiple birth §
–></multipleBirth[x]>
<photo><!– 0..* Attachment Image of the person –></photo>
<contact> <!– 0..* A contact party (e.g. guardian, partner, friend) for the patient –>
<relationship><!– 0..* CodeableConcept The kind of relationship –></relationship>
<name><!– 0..1 HumanName A name associated with the person –></name>
<telecom><!– 0..* Contact A contact detail for the person –></telecom>
<address><!– 0..1 Address Address for the contact person –></address>
<gender><!– 0..1 CodeableConcept Gender for administrative purposes –></gender>
<organization><!– ?? 0..1 Resource(Organization)
Organization that is associated with the contact
–></organization>
</contact>
<animal> <!– 0..1 If this patient is an animal (non-human) § –>
<species><!– 1..1 CodeableConcept E.g. Dog, Cow § –></species>
<breed><!– 0..1 CodeableConcept E.g. Poodle, Angus § –></breed>
<genderStatus><!– 0..1 CodeableConcept E.g. Neutered, Intact § –></genderStatus>
</animal>
<communication><!– 0..* CodeableConcept Languages which may be used to communicate with the patient about his or her health –></communication>
<careProvider><!– 0..* Resource(Organization|Practitioner)
Patient’s nominated care provider
–></careProvider>
<managingOrganization><!– 0..1 Resource(Organization)
Organization that is the custodian of the patient record §
–></managingOrganization>
<link> <!– 0..* Link to another patient resource that concerns the same actual person § –>
<other><!– 1..1 Resource(Patient) The other patient resource that the link refers to § –></other>
<type value="[code]"/><!– 1..1 replace | refer | seealso - type of link § –>
</link>
<active value="[boolean]"/><!– 0..1 Whether this patient’s record is in active use § –>
</Patient>



Alternate definitions: Schema/Schematron,
Resource Profile (XML, JSON)

5.1.2.1

Terminology Bindings











PathDefinitionTypeReference
Patient.gender
Patient.contact.gender
The gender of a person used for administrative purposesIncompletehttp://hl7.org/fhir/vs/administrative-gender
Patient.maritalStatus The domestic partnership status of a personIncompletehttp://hl7.org/fhir/vs/marital-status
Patient.contact.relationship The nature of the relationship between a patient and a contact person for that patientIncompletehttp://hl7.org/fhir/vs/patient-contact-relationship
Patient.animal.species The species of an animalExamplehttp://hl7.org/fhir/vs/animal-species
Patient.animal.breed The breed of an animalExamplehttp://hl7.org/fhir/vs/animal-breeds
Patient.animal.genderStatus The state of the animal’s reproductive organsExamplehttp://hl7.org/fhir/vs/animal-genderstatus
Patient.communication A human languageIncompleteIETF language tag
Patient.link.type The type of link between this patient resource and another patient resource.Fixedhttp://hl7.org/fhir/link-type

5.1.2.2 Constraints

  • Inv-1: On Patient.contact: SHALL at least contain a contact’s details or a reference to an organization (xpath on f:Patient/f:contact: f:name or f:telecom or f:address or f:organization)

Notes:

  • multipleBirth can be either expressed as a boolean (just indicating whether the patient is part of a multiple birth) or as an integer, indicating the actual birth order.
  • Patient records may only be in one of two statuses: in use (active=true) and not in use (active=false).A normal record is active, i.e. it is in use. Active is set to ‘false’ when a record is created as a duplicate or in error.A record does not need to be linked to be inactivated.

  • The link element is used to assert that two or more Patient resources are both about the same actual person.See below for further discussion

  • There should be only one preferred language (Language.preference = true) per mode of expression.
  • The Contact for a Patient has an element organization, this is for use with guardians or business related contacts where just the organization is relevant.

5.1.3 Patient id’s and Patient resource id’s

A Patient record’s Resource Id can never change. For this reason the identifiers with
which humans are concerned (often called MRN - Medical Record Number, or UR - Unit Record) should not
be used for the resource’s id, since MRN’s may change, i.e. as a result of having duplicate records of
the same person. Instead they should be represented in the Patient.identifier
list where they can be managed. This is also useful for the case of institutions that have acquired
multiple numbers because of mergers of patient record systems over time.

5.1.4 Linking Patients

The link element is used to assert that patient resources refer to the same person. This element is used
to support three distinct scenario’s where multiple records of the same person exist:

5.1.4.1 Duplicate Patient records

Managing Patient registration is a well known difficult problem. Around 2% of registrations are in error,
mostly duplicate records. Sometimes the duplicate record is caught fairly quickly and retired before much
data is accumulated. In other cases, substantial amounts of data may accumulate. By using a link of type ‘replace’,
the record containing such a link is marked as a duplicate and the link points forward to a record that should
be used instead. Note that the record pointed to may in its turn have been identified as created in error and forward
to yet another Patient resource. Records that replace another record, do not point back to the replaced record.

5.1.4.2 Patient record in a Patient index

A Patient record may be present in a system that acts as a Patient Index: it maintains a (summary of) patient data and
a list of one or more servers that it are known to hold a more comprehensive and/or authorative record of the same patient.
The link type ‘refer’ is used denote such a link. Note that linked records may contain contradictory information. The
record referred to does not point back to the referring record.

5.1.4.3 Distributed Patient record

In a distributed architecture, multiple systems keep separate patient records concerning the same person. These
records are not considered duplicates, but contain a distributed, potentially overlapping view of the patient’s data.
Each such record may have its own focus or maintaining organization and there need not be a sense of one record
being more complete or more authorative than another. In such cases, links of type ‘seealso’ can be used to point to
other patient records. It is not a requirement that such links are bilateral.

5.1.5 Merging records

This specification does not specify merge functionality: if multiple patient records are found to be
duplicates, they can be linked together, as described above. These links merely express the relationship
between records, and in the case of a replacement link, indicate a "master" record. This specification
does not mandate that FHIR servers migrate information between such records on finding such a link. Note:

  • Health information administrators may call the process "merging", but it is often implemented as "linking" at the record level
  • Servers are allowed to implement merging/record migration even though it is not mandated.

5.1.6 Search Parameters

Search parameters for this resource. The standard parameters also apply. See Searching for more information about searching in REST, messaging, and services.




















NameTypeDescriptionPaths
_idtokenThe logical resource id associated with the resource (must be supported by all servers)
_languagetokenThe stated language of the resource
activetokenWhether the patient record is activePatient.active
addressstringAn address in any kind of address/part of the patientPatient.address
animal-breedtokenThe breed for animal patientsPatient.animal.breed
animal-speciestokenThe species for animal patientsPatient.animal.species
birthdatedateThe patient’s date of birthPatient.birthDate
familystringA portion of the family name of the patientPatient.name.family
gendertokenGender of the patientPatient.gender
givenstringA portion of the given name of the patientPatient.name.given
identifiertokenA patient identifierPatient.identifier
languagetokenLanguage code (irrespective of use value)Patient.communication
linkreferenceAll patients linked to the given patientPatient.link.other
(Patient)
namestringA portion of either family or given name of the patientPatient.name
phoneticstringA portion of either family or given name using some kind of phonetic matching algorithm
providerreferenceThe organization at which this person is a patientPatient.managingOrganization
(Organization)
telecomstringThe value in any kind of telecom details of the patientPatient.telecom